This week
while visiting my Rheumatologist she stated,
“You sure like to keep us on our
toes.” She was referring to all of my
surprise medical issues in general, but mostly referring to my surprise
hospital admission last week.
For anyone who has spent time with me over
the past few weeks you will have noted my annoying hacking cough. It was going on for several weeks with no end
in sight. On top of the cough my leg
starting hurting, not good, but I wasn’t too worried. Monday (June 24th) I went to work
and did all of the things I normally do then went to bed early since I wasn’t
feeling my best and figured a good night rest would do me good. I woke up at about 4am on Tuesday and my leg
was killing me. No matter how I moved or shifted I couldn’t relieve the pain.
My cough also seemed worse. I relocated
downstairs to the sofa thinking that the change in location might help. I can’t remember if I fell back asleep or
just floated restlessly in the cool semi-darkness of the living room, but when
it was time to get up to go to work I felt horrible. I had chills and felt flushed. When I took my temperature it was 102. My leg looked slightly swollen and I just
felt like something was very wrong. I
decided that I should probably go and get checked out at the emergency room. I have a history of having serious things
wrong with my health while showing minimal symptoms so I’m always a bit on
guard.
When I first
arrived, the triage nurse and the emergency room nurse seemed skeptical and
seemed to think I was just being lazy about not going to my family doctor and
was clogging up the ER. They first sent
me down to have an ultrasound of my leg.
Shortly after getting back to the ER the doctor came in and told me that
I had a large DVT (deep vein thrombosis/blood clot) in my right leg. Last year I had a friendly little superficial
blood clot in my left leg, but my current clot was a DVT, the unfriendly can
potentially kill you clot. I was sent
for a chest x-ray and then a chest CT scan.
Once the results were all back the doctor came in and sat down looking
serious. She said a bunch of times throughout our conversation that she was
glad that I had decided to come to the ER when I did before it was too late. She explained that I had a pulmonary
embolism. A piece of the blood clot from
my leg had broken free and was now in the lower lobe of my right lung. Had the entire blood clot decided to move to
my lung it would have killed me. I think
the doctor was waiting for me to start crying at my brush with death but my
mind was appreciating this odd you might even say ironic moment. You see, when I was 21 I was in the ER
because I only had 3,000 platelets left and my blood wasn’t clotting and
doctors were worried that would bleed to death at any moment. My how times have changed, of course I am
extremely happy to be alive through that experience and this one. A few years ago a co-worker died from a pulmonary
embolism so I know I am quite fortunate.
I was told that
I would have to be admitted and that I could no longer walk and had to be still
until my blood was sufficiently thinned to be sure the clot no longer had
intentions of moving. I waited for a few
more hours in the ER until a room could be secured. I was grateful it was a Tuesday so I could be
comforted by a marathon of Law and Order SVU. Eventually I was moved to floor
3B to my lovely nice single room.
This wasn’t
my first hospital admission, but it was my first stay at the new Virtua
Voorhees. If you have to be admitted
into the hospital it isn’t a bad place to be.
I have to start out by saying that everyone was super nice. It was almost as if they adapted the Disney
World staff handbook to use with hospital staff. Even the housekeeping and room service staff
were attentive and pleasant. Speaking of
room service, it definitely made a difference.
Instead of getting a little card prior to meals with maybe, three
choices like most hospitals offer at the new Virtua you get a room service
menu.
You call a number and you can
order food from the menu whenever you want throughout the day. When they deliver the food they knock on your
door and say, “room service,” like you are at a fancy hotel. Some of the food items were better than
others but it was certainly an upgrade from most hospital fare.
This was my
grilled cheese lunch one day
The
oatmeal cookies were really good, so I got one with every meal except breakfast.
I had a very
nice view from my window, though I couldn’t really appreciate it since I wasn’t
allowed to get out of bed until my last day.
My
co-workers sent me my favorite flowers, sunflowers to brighten up my room. It was fun because the flowers seemed to
brighten up everyone’s day who came into my room. I’m glad lots of people got to enjoy them.
This was my
fancy necklace, which was actually a heart monitor that I had to wear my whole
stay. I started to know how that
albatross guy felt. Also that gluey
stuff from the electrodes is impossible to scrub off once you are home.
They gave me
lots of IV heparin and then switched me to shots which I had no problem
self-injecting thanks to 3 rounds of IVF. I was also taking oral blood thinner
and they gave me two IV infusions of iron since my labs showed that my iron was
low. I’m usually used to watching clear
fluids move through my IV so the color of the iron was a little unnerving. I still wake up every morning and check
myself for any possible mutations (I want to be a shape shifter like Mystique
if I had a choice).
Once the
doctors were satisfied that my blood was sufficiently thin and that I was no
longer in danger I was allowed to go home with instructions to self-inject
shots until Monday, oral blood thinner for the next six months and I had to get
labs everyday for one week and then twice a week for the next six months.
Shots at home
I now have a
new hematologist who will be following me.
He ran a lot of specialized labs that won’t be back for a few weeks but
the theory is that the clot was episodic, which means I won’t have to be on
blood thinners forever.
What most
people don’t know is that in May I found out that I was pregnant. No drugs, no procedures, just old fashioned
conception. It came as quite a shock
since we were told there was almost no chance we could conceive on our own. I didn’t find out until I was 5 weeks. At 5 weeks everything looked fine but when I
went back at 7 weeks the ultrasound showed that the pregnancy had shut down at
5 weeks. It had never progressed past
that point and it was no longer a viable pregnancy. I opted to have the pregnancy extracted so
that pathology could be done to see if genetic issues caused the pregnancy
loss. All of the results came back 100%
normal. No genetic issues at all. The theory is that the pregnancy triggered
the blood clot; that when my estrogen is high it flips on a switch that hyper-coagulates
my blood. There is still a lot of figuring out to do but I would rather have an
episodic blood clot than a I have to be on blood thinners forever clot, though
blood thinners forever is preferable to death.
For now I’ve
been resting as much as I can. I still
have the annoying cough from my lung tissue being irritated by the clot but at
least my leg hurts less and feels much better.
My biggest complaint is that I have extreme fatigue at the moment which
has made me grumpy because if you haven’t noticed I love being active and out
and about and all of the sleeping is getting old. It is especially difficult during a weekend when there are lots of fun festivities going on and I'm just home making myself depressed by watching House Hunters Beachfront Homes. Hopefully the sleepiness will pass and I’ll soon be out
and about once again.
Wow. What an adventure. You logged it all so well. You must be some kind of shape shifter or mystical person to have gone through all that and still be so upbeat. My new name for you is Sunflower Sarah.
ReplyDeleteI am so happy things turned out well. Thank you for sharing this with us.
ReplyDelete